Thyroid Skin Rashes: The Hidden Connection No One Talks About
Have you ever felt like doctors don’t take you seriously? You know that something is wrong with your health, but your practitioner is too quick to dismiss the concerns you experience. Through your own research, you stumble upon this concept called gluten intolerance and realize that all of the signs of gluten sensitivity listed are identical to what you’re experiencing.
When I was in college, I too chased after elusive answers regarding my health while every doctor I saw felt my case wasn’t worth the time. A total of seven different doctors over the course of two years attributed my undiagnosed gluten intolerance (at the time) to other seemingly unrelated individual symptoms that got me nowhere.
All of my severe symptoms that were actually related to gluten were boiled down to “being a typical female college student” (what does that even mean?!), chronic fatigue, depression, anxiety, attention deficit hyperactivity disorder (ADHD), chronic migraines, and one doctor even said I was just being paranoid.
Their solution was to throw medication at the various problems which included sleeping pills, separate anti-depressant and anti-anxiety medications, and muscle relaxants.
Despite my persistent prodding for real answers and diagnostic testing, these common “fixes” were equivalent to placing the tiniest band-aid over a gaping wound—I was not being helped, healed, or listened to.
Can you relate to my experience?
Sadly, I’ve found this rings true for many people out there who remained undiagnosed with gluten sensitivity for years and were given false answers that led nowhere.
If you still don’t have all of your answers, know that you may exhibit one or several nagging and debilitating signs of gluten sensitivity. These are symptoms that many medical practitioners don’t attribute to a possible root cause of gluten intolerance or sensitivity.
What’s worse, you’re more likely to be left in the dark without answers if you aren’t experiencing gastrointestinal related symptoms like diarrhea.
What’s worse, you’re more likely to be left in the dark without answers if you aren’t experiencing gastrointestinal related symptoms like diarrhea that seem to be one of the more clear-cut signs of gluten sensitivity.
Find out if Gluten is causing all of your symptoms in ONLY 7 days. CLICK HERE to find out how.
12 Surprising Signs of Gluten Sensitivity
Gluten sensitivity (or intolerance, as they are the same thing) can manifest as much more than just IBS-like symptoms and stomach problems. That’s why doctors are more likely to dismiss the idea that you even have this because if they don’t hear about digestive problems as your chief complaint, then it must be something else.
It can be an exclusively neurological disease for many. In 2013, an in-depth study by a team of researchers including renowned Dr. Alessio Fasano stated that “both Celiac Disease and gluten sensitivity may present with a variety of neurologic and psychiatric co-morbidities, however, extraintestinal symptoms (outside of the digestive system) may be the prime presentation in those with gluten sensitivity.
“However, gluten sensitivity remains under-treated and under-recognized as a contributing factor to psychiatric and neurologic manifestations.” (source)
It’s very important to note that not all cases of neurological symptoms are caused by gluten. However, issues like depression and anxiety which are not typically linked directly to gluten consumption CAN be signs of gluten sensitivity for some.
Too often, painkillers, antidepressants, and other prescriptions are thrown at patients when no clear diagnosis is made, missing the real cause behind the symptoms bubbling up on the surface.
The bottom line is that signs of gluten sensitivity can show up beyond the digestive tract. One of the more common problems you might not realize is gluten’s capacity to wreck your skin (your largest organ!), joints, bones, mouth, endocrine system and more.
Because your symptoms seem all over the place, doctors often have trouble piecing them together as signs of gluten sensitivity. The current model of medicine treats symptoms rather than looking for the underlying cause which further explains why doctors are quick to prescribe medication that might ease only your momentary suffering.
But it certainly doesn’t excuse the lack of education and open-mindedness that would serve patients better if they knew more about the interaction between food and the body.
If you don’t feel listened to, then it may be time to find a new doctor or add a more knowledgeable practitioner to your team.
I eventually found a doctor who listened and told me I needed to stop eating gluten—for good. In a mere two weeks off gluten, all my plaguing symptoms began to cease and things I didn’t realize were actual problems with my body started to clear up, including achy joints (at age 21 no less!), muscle spasms, strange tingling sensations, and random dizziness.
And for all the doubters out there, gluten sensitivity is oh so very real.
Here’s a checklist of some of the surprising signs that have been linked it to gluten sensitivity and make sure to get support with a trusted practitioner who has extensive experience with gluten-related issues.
#1 Signs of Gluten Sensitivity – Depression and Anxiety
Depression is a serious health concern for many people. Symptoms of depression can include feelings of hopelessness, lack of interest, low energy, appetite changes, sleep changes, anger, and more.
Some patients do require medication to correct persistent imbalances with depression. However, often underlying causes of depression are not investigated.
Research now confirms that Celiac disease and gluten intolerance are linked to depression, anxiety and mood disorders. Once gluten is removed from the diet in the gluten sensitive, depression and anxiety can actually be resolved.
Symptoms of anxiety often go hand in hand with depression which makes it very hard to relax and think clearly. Some may experience sensations of panic, loss of control, heart racing, chest pains, trouble breathing or feelings of passing out.
Anxiety attacks can even mimic heart attacks so it’s important to be aware of the distinction.
#2 Signs of Gluten Sensitivity – ADHD
Attention deficit hyperactivity disorder affects children and adults alike, but many don’t make the connection of their symptoms to diet.
Dr. Ron Hoggan, Ed.D, co-author of the best selling book, “Cereal Killers,” wrote an article on Celiac.com citing several studies linking ADHD and gluten together. He states, “The concept of drugging a child to facilitate learning is upsetting to me, especially when there is cause to suspect that, on the gluten free diet, she may improve without intervention.” (source)
And by intervention, Dr. Hoggan is referring to medicinal intervention. Alternative approaches address food sensitivities and intolerance as a root cause of behavioral disorders.
This follows the line of research and treatment that Dr. Charles Parker uses to treat patients in his psychiatric practice. He first looks at the gut because neurotransmitters are produced directly by what’s broken down in the digestive system. Leaky gut can facilitate a number of mental health issues because gluten and other food proteins are essentially sneaking into the body where they don’t belong.
#3 Signs of Gluten Sensitivity – Brain Fog
Being unable to think clearly is just as stifling as it sounds. When you feel disconnected or just plain “out of it”, it might not be all in your head.
Gluten can have the effect known as “foggy brain” in sensitive individuals.
While it can be difficult to quantify gluten-induced “brain fog”, researchers in a 2002 study in the Journal of Neurology, Neurosurgery and Psychiatry found that there may be significant cross-reactivity of IgG antibodies to gluten and other different antibodies that could result in mental fogginess.
These antibodies can also cause inflammation which can further exacerbate the condition making it difficult to recall names, make quick deductions or decisions, or struggle to remember recent events. All are signs of gluten sensitivity that are overlooked and ignored.
Another interesting experience similar to brain fog is the sense of feeling intoxicated or drunk after consuming gluten. You didn’t have any alcohol at all, but you’re feeling as if you’d drank too much.
Find out if Gluten is causing all of your symptoms in ONLY 7 days. CLICK HERE to find out how.
#4 Signs of Gluten Sensitivity – Autoimmune Disease
Gluten consumption has been linked to numerous autoimmune diseases and was a hot topic during the Women’s Gluten-free Health Summit.
Sarah Ballantyne PhD, also known as The Paleo Mom, shared some vital information with us concerning gluten sensitivity and autoimmunity. “Every single autoimmune disease in which gluten as a contributor has been investigated has shown that gluten sensitivity is a contributor to that disease.”
Scary right?
One of the biggest reasons why you must avoid gluten if you’ve already been diagnosed with any autoimmune disease is gluten’s ability to increase gut permeability. (source) That means your gut is “wide open” to food proteins and anything else in your gut that can act as an immune trigger.
But luckily, making the connection is the first step towards better health.
It’s even possible to know if autoimmune issues are brewing years before they bubble up to the surface and you end up with a diagnosis. This gives you time to make nutritional and lifestyle adjustments that can impact whether you eventually develop a full-blown autoimmune disorder.
Just to be clear… here’s a list of some autoimmune diseases known to be related to gluten sensitivity — Celiac Disease, Hashimoto Thyroiditis, Graves Disease, Rheumatoid Arthritis, Vitiligo, Sjogren’s, Multiple Sclerosis, Crohn’s, Ulcerative Colitis, Dermatitis Herpetiformis, and Type 1 Diabetes. We’ve talked about the connection between gluten and your thyroid previously, and it’s important to remember that it is a very prevalent condition.
#5 Signs of Gluten Sensitivity – Low Immunity
If you’re prone to frequently getting sick, you should consider gluten to potentially be an issue.
Jennifer Fugo, founder of Skinterrupt, shared that the first sign of gluten intolerance for her was an extremely depressed secretory IgA antibodies result on adrenal testing she completed in early 2008 before she had any idea of what was wrong.
What’re secretory IgA antibodies, you ask?
It’s a class of antibodies (or you could think of them like little policemen) that your body makes. They exist primarily in saliva, tears and in the gastrointestinal tract (though some do exist in the blood).
These antibodies are essentially your first line of defense when a cold comes knocking at your door.
When you’re sensitive to gluten or have celiac disease, one sign is a depressed level of IgA antibodies meaning that you don’t have the proper defenses in place to keep you well.
Believe it or not, IgA deficiency is “the most common immunodeficiency in Caucasians” occurring at a rate of 1 in 600.
And not to keep harping on the gluten autoimmune disorder connection, BUT it is commonly seen in many autoimmune diseases including the thyroid condition known as Graves disease, Lupus, Type 1 diabetes, Celiac disease and rheumatoid arthritis. (source)
#6 Signs of Gluten Sensitivity – Dental Issues & Osteoporosis
Cavities, canker sores (mouth ulcers) broken teeth, and tooth decay can plague those with undiagnosed gluten sensitivity as well as Celiac disease.
A 2009 study published in the journal BMC Gastroenterology (source) found a positive link between gluten sensitivity and recurrent mouth ulcers, of which I personally experienced growing up (Recurrent aphthous stomatitis, or RAS).
What’s worse is that calcium levels of gluten sensitive individuals can be staggeringly low due to malabsorption!
This leads to weakened bones and teeth, explaining why osteoporosis is another big sign.
Experts in functional medicine often recommend getting a DEXA scan, which measures bone density. It’s a reliable way of determining your calcium levels and overall bone health rather than relying on blood labs.
Unfortunately, while calcium levels may appear normal on a Comprehensive Metabolic Panel blood panel, the calcium level of your blood isn’t at all reflective of what’s stored in your bones.
#7 Signs of Gluten Sensitivity – Unexplained Weight Loss or Weight Gain
Can’t keep your weight in check? A sudden or even gradual change in weight while eating habits remain more or less unchanged can be an indicator of a bigger health problem.
For some with malabsorption and gut permeability due to gluten intolerance or sensitivity, unwanted weight loss despite regular calorie intake can have dangerous effects.
On the other hand, gluten can trigger systemic inflammation in the body that mimics stubborn weight gain. So it looks like you’ve been increasing your body’s fat stores, but no matter how much you diet or exercise, the weight doesn’t budge.
Instead, realize that gluten triggers inflammatory weight gain which is only reversible by removing gluten for good and healing your gut.
Another point to consider is that the type of gut bacteria living in your digestive system can play a direct role in your body’s ability to stay at a healthy weight. Brenda’s Watson, CNC shares that even just a 7-day round of antibiotics can negatively alter gut bacteria for up to two years. Keep in mind that even chronic candida (yeast) infections can also play a role in weight gain and loss.
Also, because there’s such a strong link to gluten impairing the function of your thyroid, you should always consider how optimal is your thyroid. Many people with Hashimoto’s Thyroiditis, for example, have found that they feel a marked improvement from the strict removal of gluten from the diet.
Find out if Gluten is causing all of your symptoms in ONLY 7 days. CLICK HERE to find out how.
#8 Signs of Gluten Sensitivity – Migraines and Headaches
Migraines and chronic headaches are common signs of gluten sensitivity often cited by those who’ve suffered for years without any help from medications.
Even Jennifer Fugo has shared that she was popping Tylenol daily since she was a young teenager due to nonstop headaches.
Her eyes and brain all checked out as fine so doctors were clueless. Once gluten was out of her diet, the headaches completely went away!
Though migraines are certainly more serious, gluten also can be a trigger.
According to Mark Hyman MD, a leader in functional medicine and eight-time New York Times bestselling author, over 10 million Americans suffer from migraines. Anyone who has ever experienced a migraine knows how seriously painful they can be.
While not all cases of migraines are related to gluten, it’s been linked as a significant cause for some.
In a study that measured migraine headaches in gluten sensitive individuals, chronic headaches were reported in 56% percent of those with non-celiac gluten sensitivity, 30 percent of those with Celiac disease, and 23 percent of those with inflammatory bowel disease. Only 14 percent of those in a control group reported headaches. (source)
Meanwhile, Dr. Alessio Fasano, medical director of the University of Maryland Center for Celiac Research, states that a 100% gluten-free diet can relieve many cases of chronic migraines.
#9 Signs of Gluten Sensitivity – Skin Problems (Including Skin Rashes)
From eczema, rosacea, unexplained hives, and acne to psoriasis, vitiligo, and dermatitis herpetiformis (DH), gluten can cause some extremely uncomfortable skin issues.
Basically, inflammation triggered in your gut combined with other environmental triggers cause eruptions of rashes, itchiness, burning, redness, and even painful blisters.
Here are 18 skin signs of gluten sensitivity!
The Gluten Intolerance Group (GIG) describes the severe rash of DH as, “a chronic disease of the skin marked by groups of watery, itchy blisters that may resemble pimples or blisters. The ingestion of gluten (from wheat, rye, and barley) triggers an immune system response that deposits a substance called lgA (Immunoglobulin A) under the top layer of skin. IgA is present in affected as well as unaffected skin…” GIG goes on to state that, “If you have DH, you always have gluten intolerance.” (source)
But the issue with eczema and psoriasis is somewhat different as they aren’t always directly linked to gluten ingestion. Instead, gluten increases gut permeability or leaky gut which in turn allows other partially undigested food proteins, gut bacteria or yeast, and other inflammatory waste to enter your body.
In the case of psoriasis, you are dealing with an autoimmune disease that is perpetuated by continued gluten exposure.
But with eczema, the picture is much more complicated due to over 15 unique root causes of which any combo can be a trigger. Gluten certainly is one along with many other food proteins which is why the first step in addressing eczema and other rashes is to tweak your diet.
The Eczema & Psoriasis Awareness Skin-Soothing Cookbook is a great way to start doing that especially since it’s free for a limited time!
Plus, if you want to dig in more on these annoying chronic skin rash conditions, join me for the online Eczema & Psoriasis Awareness Week!
>>> CLICK HERE TO GET A SEAT! <<<
#10 Signs of Gluten Sensitivity – Hormonal Imbalances and Adrenal Fatigue
Hormone imbalance can manifest itself as irregular menstrual cycles, weight gain or loss, hot flashes, low energy levels, erratic sleep patterns and more.
On the topic of gluten sensitivity and female hormones, Dr. Daniel Kalish D.C. states that “a strong relationship has been established in medical literature between gluten sensitivity and the hormones progesterone and estrogen. Additionally, most of my patients with gluten sensitivity have an adrenal hormone imbalance, and this becomes exacerbated for patients during menopause…” (source)
Dr. Kalish notes that he’s “…observed serious problems often begin to reveal themselves when women with gluten sensitivity reach peri-menopause.
“As their ovarian output of sex hormones drops, the resulting hormone imbalance is worsened by overconsumption of gluten. The adrenal glands respond to the stress of unstable blood sugar and gastrointestinal tract inflammation caused by gluten by increasing cortisol. This causes increased body fat, fatigue, and unstable moods.”
And let’s not forget the role of your thyroid in healthy hormone balance! Gluten is a trigger for those with autoimmune thyroid conditions.
Plus, if gluten is truly a sensitivity or intolerance for you, then it’s also an additional stressor that will overtax your adrenal glands in time.
Since the endocrine (aka, hormonal) system is one giant balancing act, it’s important to look at what’s going on as a whole so that you can see what problem is impact which part of the system.
#11 Signs of Gluten Sensitivity – Joint and Muscle Aches
Got joint and muscle aches? Or maybe you were told that you have Fibromyalgia (without any reason for why the aches and pain won’t go away).
Either way, gluten can exacerbate joint and muscle issues because of two very distinct reasons.
First, gluten’s damaging inflammation in susceptible individuals can cause flares and pain. WebMD states that, “Joint pain and inflammation are (also) common symptoms of gluten sensitivity. And research does show links between the two diseases.”
The Arthritis Foundation has also published information regarding the link between gluten sensitivity, joint pain, and arthritis conditions.
Second, we’ve previously mentioned the connection of gluten to leaky gut. If your gut is no longer sealed tight so that foods and other proteins stay securely within the digestive tract, they’re going to cause trouble. When your body encounters these non-self proteins, it builds antibodies to help neutralize them (since it is sensing a threat).
Those antibodies can become mistaken and start attacking other tissue in your body (like your joints)… and that is why gluten is so closely tied to autoimmune disorders.
#12 Signs of Gluten Sensitivity – Extreme Chronic Fatigue
Do you feel like you can never sleep enough?
Jennifer of Gluten Free School shared that the reason she sought medical help initially was because she could sleep up to 11 hours and still wake up exhausted and felt like she was drugged.
Though she did have gastrointestinal issues, her extreme exhaustion seemed more pressing.
Since removing gluten, she can get up daily at 5:45 am without an alarm and no need for caffeine.
So even if you’re getting an adequate amount of sleep each night, waking up feeling exhausted means that something’s up.
Gluten can contribute to feelings of sluggishness and tiredness in several different ways. When your body is in a state of inflammation and spending resources dealing with gluten proteins, it’s at the expense of available energy stores and normal bodily processes.
NEED MORE HELP?
If you feel like you’re at your wits’ end and fed up knowing what to eat…
Or you feel like food is your enemy now that you’ve gone gluten-free because you don’t know what’s safe…
And you’re feeling deeply overwhelmed with the process of ridding your life of gluten…
I have a really neat opportunity for you so keep on reading!
I’m hosting a special webinar (that’s totally free) where I’m going to talk about the process how to simplify going gluten-free as well as how I (and my clients) have gotten to a place where the lifestyle and diet are a piece of gluten-free cake.
If you’ve been GF for less than 2 years, are still struggling to “stay on the wagon,” or haven’t even started going GF yet… this is for you.
Today and tomorrow, I’m hosting an exclusive webinar called…
There’s no cost to attend and I’m going to cover some of the biggest questions you have!
Think of it like you and I sit down for a cup of tea (or coffee)… let’s talk. Plus I’ll have a special surprise for you at the end! BUT please be aware that I will not record this event so if you miss it, then you’ve missed out.
Have any more symptoms that have surprised you to add to the list? Share your experience in the comments below!
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my throat and esophagus start to close up when I have too much wheat. This happens also to my son. I also suspect this was my mom’s issue for 20 years. The doctors could not figure it out. She ended up eating puréed foods for quite awhile before she passed.
Nancy, this same thing happened to my mother as well about 40 years ago. I remember my mother eating baby food as part of an elimination diet. Along with that and one of the doctors mentioned in this article he diagnosed her with gluten sensitivity and she has not eaten it since and had no problems. Unfortunately for me, I am now the age she was when all this started and now I am having the same symptoms, (sigh). I’m two weeks into gluten free. Luckily for this new genre we have lots of alternatives, unlike my mother that just has never enjoyed a cookie, bread, or even the pies that she makes so well.
Ok my symptoms to gluten are: head aches, sore throat, swollen glands, violent feeling of shaking in my sinus forehead throat area (hard to explain but u may relate if u feel the same thing) sore tumny but not always, diarrhea but not always, mild aches and pains in legs, foggy brain, depression, anxiety mild to severe depending on how much gluten ive eaten, anger, insomnia, did i mention foggy brain and a little bit more foggy brain and then some foggy brain lol the foggy brain kills me especially when theres so much u want to do in life but u cant fucking concentrate or have any energy to do jack shit! Waking up feeling violently ill and not the fluey kind of ill but that ill feeling like this is really not normal. Sluggish, fatigued, tired all the bloody time! U tell urself that ur going to give it up but u keep going back like i damn drug addict because u love food so much! I also have ibs and bad pms like everymonth. Aswell as ovarian cyst that burst like a mofo and give the worst pain which could be related to the gluten sensitivity because it puts your hormones out of whack! But damn it, i just keep going back to the stuff because its in everything i love! Cakes cookies batter pastry u name it i love it lol. Ive tried stuff with no gluten and to be honest theres shit in those products that seem to make me sick also. God help us. I love healthy food to but I’m addicted to junk! Help me! Lol
I was actually doing an elimination diet for another issue and came off wheat, dairy, and corn. What I found was that when I tried to eat wheat I would, within a few hours, develop flu like symptoms. I got a dull headache, felt nauseas and like I was about to throw up. I tested this three times (by accident the third) but all three times were the same symptoms. I then concluded that I unknowingky had a gluten sensitivity and although I missed eating it, I just couldn’t allow myself to feel like that again. I’ve listened to a lot of your podcasts and they have been very enlightening. Thanks for what you are doing.
Excellent information here and lots of food for thought…:-) Does get tiring, though, trying to figure this out all by yourself and especially when so many symptoms overlap with each other.
Hi, I have candida overgrowth that has recently been treated and glomeralonephritis from virus Epstein bar and rheumatoid arthritis I also have allergies.is your programme good for me.and will I be able to find all foods in Greece? Thanks,waiting for your reply
For years I suspected an allergy to either dairy or wheat, but never got tested and never/rarely ate one without the other. Back in June, my doctor recommended that I go gluten free to help stave off diabetes and as a way to lower my blood sugar. I was resistant at first, just due to my love for bread, but I started researching anyway (which, in part, led me here) and was convinced that this was what I needed to do.
Boy was I right! Within about five days or so I could tell the difference. Things were changing for the better. I used to feel nauseated after meals and had a lot of phlem in my throat, sinus issues, etc. I used to take an over-the-counter allergy pill at the suggestion of my doctor because I’d have earaches and sore throats for no apparent reasons. I ran out of the pills shortly after I went gluten free and since I didn’t seem to miss them, I’ve never replaced them.
I’m sleeping better, too, usually, so I agree that it was a symptom of gluten intolerance.
Sever depression so horrific I was continually terrified. Fatigued to the point of being unable to walk or stand for long. Always dizzy & out of breath. Can’t move. Life seems over.
This sounds a lot like my symptoms. I’ve been to a lot of doctors trying to figure out what was wrong. I found a functional doctor who said I needed to be completely gluten free, along with no dairy, corn or soy. I have to admit it’s difficult to give up. I know this was a big part of my problem though because within just a few weeks, I’ve lost about 13 lbs— without dieting. I eat as much as I want of meat, fresh fruits & vegies. I’m starting to really tell a difference in how I feel.
I have had several of these symptoms since I was a child, my mom would take me to specialist for my insomnia, ADHD, anxiety, allergies and rashes, later for all the issues I had with my period. I was diagnosed with chronic fatigue, IBS, adhd and no doctor could ever get me to have a regular cycle even with birth control. Started getting extremely painful intestinal infections in my early 30s and an emergency room doctor suggested I try an allergy elliminaton protocol. After a couple days being off gluten I was a new person!! It took a couple years for everything to work itself out but things I had no idea would be effected by my diet just fixed themselves. Now at 35 I finally get to feel like a regular person!
I went through the same roller coaster ride when mine hit rock bottom when I was 40. I was told “it’s because I’m approaching that age or empty nest syndrome or just depressed because I was getting old”. I did have severe weight loss (5’6″ and lost down to 89 pds from 141 in 3 months”. Diarrhea, vomiting, nausea, abdominal pain, chronic pain all over my body, migraines, blurred vision, extreme fatigue. Eventually found out that I have celiac disease but it was a long 5 year torture of trying to find a doctor who would listen. Finally did and a simple blood test. Still have problems now from cross contamination or hidden gluten but doing much better. I still find doctors now (as insurance changes with the company I work for have to change) that believe this is a totally bogus disease and all in my head because “I am a woman of you know a certain age”.
Wouldn’t lupus also fall under the auto immune disorders? I had read in an article that gluten may be a factor of lupus. Alot of the signs of gluten intolerane sound very much like lupus symptoms.
I have lupus and I’ve begun to cut gluten out of my diet to see if i will improve.
Does anyone one know of any articles focused on studies between lupus and gluten? I’m trying to gain as much information as I can. Any and all would be great! Thanks!
Hi Amber, you should check this site….http://www.gaps.me….Dr. Natasha Campbell-McBride. There is a lot of information & I believe I read of the lupus/gluten connection. I was diagnosed with discoid lupus a while back. Anyway, i’ve come to believe I have a gluten intolerance (probably to all…wheat, dairy, ect.) for a while now. Lots of intestinal discomfort, depression &anxiety leading to panic attacks, brain fog, extreme fatigue (seemingly for no real reason), irritability & aggitation, pretty much constant headaches & migraines. …this list could go on. One symptom I have that I haven’t read anyone mention is swelling/puffing up of tissue around my eyes. I’m not doing well yet with stopping the eating of bread which is really hurting me but as soon as I’m done I can literally feel the puffiness occur. Gluten intolerance is hard to deal with when most of the time you can’t think straight or so fatigued you don’t want to go out anywhere, or feeling so depressed you don’t want to be around anyone & it doesn’t help that my husband dosen’t seem to believe what i tell him about gluten & gmo’s, what their putting in our food. I’m having a hard time eating anything these days.I’m about 5’6″ & dr.s scale said 100 lbs. Have lost any faith in our Dr.s & medical system, they are only serving the pushing of dangerous drugs for pharmaceutical profits. Doctors don’t listen to what their patients are saying about how or what their feeling. Trying to gather supplies for gluten free bread making, there are more & more on pinterest I see. I apologise for rattling on &on (think this is first comment I’ve ever done) but would like to thank everyone out there for all the information your sharing. Be well….
Dawn, I am on the GAPS diet and can completely relate to how you feel. I’m honestly a different person now than I was mere months ago. From thinking that death was the only way to get pain (physical, mental and emotional) relief, to actually living life! Check out the blog quirky cooking , she has a grain free bread formula that might help you out.
It is in my opinion important to recognise that you have a dependency upon bread products. In this day and age there are simple recipes for gluten free baking – and therefore it is up to you to decide whether to stop right now or go on being ill. Also I have discovered japanese rice crackers (with sea vegetables) absolutely delicious in place of crackers and oat cakes. Try these for a month or so. For me I am not sure about oats – but wheat definitely has plagued me for years unknowingly – and has given me many horrible symptoms. Your problem is recognising your condition and being positive about doing something about it.
Found out I was gluten sensitive 20 years and usually manage my diet well enough but lately l have experienced 2 new symptoms when I eat gluten products; itching inside my ears and mild bloody noses when I blow my nose!! I could not imagine explaining those to a doctor!
I had every thing on your list quite severely, except for the skin issues (unsure about ADHD). I was diagnosed with coeliac disease at 32, but the damage done to my body by then (as well as from 2 hyperemesis pregnancies) meant that even eating gluten free grains and starches, such as rice, corn, and potato, had me incredibly fatigued and sore. I have started a gut healing diet and have found great improvement eating fermented foods, slow cooked meat and veg, and eggs. I’m only a few months in, but am a new person. Living, with manageable pain levels without medication is a huge change.
If you don’t mind me asking, what was the diet you done
Thank you
Hi Denise, Are you asking what my diet is like now?
Please share the gut healing diet. This diagnosis is new for me. I’ve experienced most of the aforementioned symptoms, including the fatigue, skin rash, migraines, body aches, excessive swelling and bloating. My PCP noted that my belly was abnormally round and hard, but offered no explanation or cure. The difference is I gained 20-30 lbs that would not come off, even with a strict diet and HIIT training 4 days a week. I’m willing to try anything at this point.
Sounds like she would be on the GAPS diet from the description
I can relate to 90% of this. Thankyou so much for this info. I felt a sence of ease as i was reading this as now i don’t feel as isolated and singled out.
Where are your podcasts? The information you provided was great. I’m on my 4th week gluten free…well just got rid of my gum. But still learning it is EVERYWHERE!
Hi Heather! I totally get that… the podcasts can all be found here: https://www.jenniferfugo.com/listen
Enjoy and let me know if you have any questions 🙂
Hi, I got a very severe skin rash on my hands and feet last August, in september I took gluten and all grains out of my diet, I couldn’t believe how my whole system improved. In December I started eating gluten again and found it hard to start again on the diet. I started in June and again felt great. I find if I accidently eat something. As well as stomach cramps I feel dizzy, nausea shivery and this might last for days… and I sleep for hours and feel really tired, is this typical of gluten sensitivity. I don’t think I can go back on gluten to have tests as I couldn’t tolerate the symptoms.
i have been gluten free now since april … iv been really good no cakes or the likes at all … iv been telling my doctor for years I’m gluten intolerant …but they wont have any of it … now back in 2011 I had a test but because my stomach was so bad at that time I was on a liquid diet only ..not a solid in sight … hence why it came back negative…. I have a celiacs test in the morning so to prepare for this test iv had to reluctantly eat gluten again … I’m in agony… my stomach has bloated …im burping.. I’m sweating…I feel sick…im tired and have a stinking headache and I feel dizzy …. I only ate it an hour ago… so its safe to say I have been right all along, I wish these doctors would listen to their patients …fingers crossed I get the right diagnosis….
How did your test go, Lou?
How do I go about trying to get tested for this
Hi, I would really like to know if gluten intolerance has been linked to preeclampsia in any way?
Hi Ori,
I can’t truly say. A recent study published found no increase in preeclampsia in those with celiac disease. You can see the information here: https://www.ncbi.nlm.nih.gov/pubmed/26432464. Is there a reason you are asking this?
I am age 45 and have been vegan for 3 years. I was vegetarian for over 22+ years and lived on pasta A a daily go to. I recently went on a high protein regimen to loose weight. I avoid soy but thought I had good luck with wheat gluten. I was digesting over 140+ grams of vegan protein daily that was all predominantly whet gluten as the main ingredient in the form of vegan burgers and meat replacers. After about 6 weeks I woke one morning and my hands could barely close and had a lot of pain. I immediately blamed the sodium and even considered too much protein as the culprit. I continued to consume the burgers of wheat gluten cutting down a bit and cutting all sodium I could. Nothing changed and only became worse. Being an artist inuse my hands daily. After several more weeks I finally linked it to what I belive to be gluten intoerence. I am 2 weeks gluten free but still have pain in finger joints at night and in the morning. How long do you think this will last? It has eased up little by little. This has been the worst thing I have experienced. I will now avoid all gluten like the plague. Upon much reading I have several other symptoms too. Any advice is appreciated as this did not happen at all prior to my increased wheat gluten consumption.
Hi Tracy,
It sounds like since you were eating pasta daily, it’s possible that you’ve had issues for a long time which likely means that it will also take a long time to address all the symptoms associated with gluten sensitivity. However you also have an additional problem that you haven’t mentioned that you’re addressing which is the long term leaky gut that’s probably been created due to continuous, daily ingestion of gluten for 22+ year which was exacerbated by your recent dietary change. This may also mean that there are other foods you’re eating that could also be aggravating things as well.
The truth is that this is more than just changing your diet. You cannot entirely address this situation to resolve it just by being gluten-free. I know that may seem incredibly depressing and not what you wanted to hear. But no one (including me) can tell you how long it will take for this issue to go away because the elimination diet is simply not enough to fully address what’s gone on here. I would advise you to get some help here because this does require attention with more experience than you may have in this area.
If you’re open to getting some help, Tracy, I work with women wanting to resolve the issue effectively and efficiently. Because ultimately you’ve got to address the actual problem here that’s been going on for a longer period of time than just since you went high protein. Otherwise, you’ll still have issues until the root cause is actually addressed.
Thank you for this article, it really has helped me! I am two weeks gluten free and struggling to find foods to eat.
I’ve been trying to figure out if I have a gluten sensitivity for years. When I went to my primary care doctor they tested me, and kind of shrugged me off as another 20 something saying they are gluten-free. My Celiac test came back negative. I’ve always dealt with stomach aches and years of depression/anxiety. In the past year or so I’ve been having incredibly bad brain fog (which is incredibly hard to describe to someone who has never gone through it). I also feel like I’m losing my hair and have skin pigmentation on my forehead (don’t know if any or all of these are related). I’d like to get serious about following up with a doctor. Would you suggest first a a gastroenterologist or an allergist?
Hi Casey, I’m not sure an allergist can do anything for you. The reaction you’re experiencing is not one that falls under an allergist’s domain unless they are well versed in functional medicine. You could try a GI doc again or look for another type of integrative practitioner (like myself) who approaches what’s going on from a more complete perspective to identify the root cause and create a unique plan to help move your health forward.
I’d suggest getting a saliva test done to check all your hormone levels too and thyroid etc. Every thing is interrelated.
Hello… So, Today on the way home from picking my daughter up from college, we start talking about my “potty problems”. I often get immediate, gastronomic diarrhea, that my children hate, almost as much as I do. Everyone knows when I gotta go, they gotta get out! (I know every public toliet location, for every place I go to, and I often don’t go far from home.) My daughter is in a health class, and we’re talking about several things, when she suggests I get checked for gluten intolerance. At first I dismiss her, and she tells me to look it up. “Mom dont always know everythingeverything”, she says. As Im reading this article I start to wonder if she could be right. And how long might I have had this?
First of all, I’ve always been a small person. My heaviest was when I was in labor with my third child weighing 126. I stand 5’2″, so I never felt “too skinny”. Growing up I had a lot of dental problems. I had root canals on 3 of 4 sides of my mouth by 18. I was a late bloomer, not having puberty until 9th grade. Once I started I begged God to take it away because of debilitating cramps, and an impossible irregular cycle.
Finally at 27 my dr did just that, and I had a partial hysterectomy. Before having that sugery I was on every antidepressant out at the time. Ive been on sleeping meds, and anxiety meds, and like so many put on pain killers and muscle relaxers. I was diagnosed with seasonal disorder, depression, anxiety, insomnia, and many things that cause severe pain.
In 2008 I lived in MI, and like most people I knew, I lost my job, my insurance, my house, and savings. With all the depression stuff, and aches and pains, my husband thought a tropical climate might help, and we moved to FL.
When we got here, I knew it would be a long time before I would see a dentist again. State ins. dont really give dental help. So I brushed and flossed the reccommended 3x a day, and more if I ate a lot of sugar. Well today, Im considering dentures, as many of my teeth are broken, and crumbling.
Often I thought everything Im going through is because of the pain killers. (Florida drs were handing them out like candy when we got here, and those drs were cheap, and I was young and trusting those drs, thinking the cheap was out of pitty) Ive tried to get off them, but the pain is too great, and I continue to be on a low dose of pain meds.
My symptoms today are… I weigh 87#s, (my normal has been 115), my teeth are failing, my teeth always feel like I need to brush, I have a layer on my tongue that will get very thick over night, that I will scrape off. (that happens every couple months) but I will have sores on my tongue. With the layer of film always there, I have spots that its not, and those spots dont hurt, they’re just there). My hair falls out in gobs, Im constantly tired. (still in pjs at 4:12 pm, only out of bed to write this). I thought I was premenopausal, having hot flashes. I sleep 2 hours, wake for 3 or 4. Ive already talked about my “potty problems”, i generally feel ill, when I have a good day, my kids are quick to use it. Im cold 99% of the time. And while writing this, i just realized, when I gat very hungry, or haven’t eaten for a while, I usually get a burger, or sandwich. Sometimes, most times, I can’t eat 1/2 of it because my mouth and throat start burning, and instantly become inflamed. Im 38.
When I was in my 20s I thought my dad died young. He passed when he was 40. Now getting close to that, feeling how I do, I dont think thats so young any more. Which sucks because my youngest is only 13, and I want to see grandbabies from all my children.
I have a friend whose a nurse that told me to get my thyroid checked. I only have a pain dr, and when i asked him, he basically blew me off.
One more thing I will mention, is my husband needed top dentures at 28, and about 2 years ago, he got blisters on his arms. At first I thought it was bites. Now 2 years later, they are still there, not bothering him, but there.
I wouldnt know where to go to get checked. I love bread. I never heard of gluten prior to Clintons wedding. Now I must wonder if this is my problem.
I am going to try and help because I have been plagued by dental /gum problems all of my life. Always been heavy/ overweight. When I was twenty one – I went on a calorie controlled diet and part of it was not eating bread or cakes,crackers etc. Well my teeth and gums became healthy practically overnight – but I did not make the connection until years later. I think that being gluten sensitive means for me gum problems, joint pain, brain fog, water in my lower legs, skin problems, and since I stopped bread two weeks ago (this time) my joint pain has reduced significantly, my feet are not so swollen and my mouth feels so much better. Get off grains – it is only for you and you will be happier in the loo at least!!
I have had headaches, fatigue, weight loss, no appetite, and 2 respiratory illnesses and i’m still sick. Ive had my blood checked for vit. d deficiency, thyroid, white blood count, red blood count, and I still suffer from congestion. these symptoms start up when I go back to school each Sept. to teach and go away in the summer.I’m on allergy shots for about 12 allergies (mold, dust etc) but have never been tested for gluten. I’m on antidepressants and sleep aides. I had Chrohns disease and am in remission for 3 years now. what is wrong with me. my mom is sure it’s gluten but that doesn’t explain why I feel fine in the summer and when school starts I feel sick .
Hi I’ve had a camera up my rear stool tests breath test and loads of blood test all came back fine except the stool test docs said I had inflammation in the stools so had the camera done but that came back fine and that was the end of me badgering the docs do my symptoms sound like gluten intolerance
.hot flush feeling sweaty
.sensitive to the cold
.joint pain in my hip slash back and knees
.my mouth flares up with sores
.smelly gas
.really bad stomach pains and like a bubbling in the belly and the runs
.feeling very tired
.dizziness feeling off balance
.ive experienced like a tingling in my forehead like pins and needles and finding it hard to focus
.bad breath
.breaking out in spots
.feeling itchy on the legs and the chest
??? Thanks guys
Hello, sounds like gluten sensitivity and possibly lactose intolerance. Just cut out dairy and gluten for a couple weeks and if u inprove well then youll know for sure that its either those or both. After week 2 try something with dairy like a milk shake or even milk chocolate. If u react well then ur lactose intolerant. Then try something with gluten like pasta and bread. If u get any of ur symptoms (could be straight away or could be within a couple days to 4 days or even seven) well then ir def gluten sensitive. Sounds like ur highly posotove to both tho. Good luck
I have several of the symptoms you list and suspected I was sensitive to gluten. I also have to constantly clear my throat, I have asthma, and my inner ears itch. I also have psoriasis which who be under the autoimmune conditions.
What do you do if you experience all of these symptoms?
please help whoever is reading this. I am a guy age 23 and I am experiencing some serious symtoms for two years. visited several docs but none came out with proper diagnosis. I am having one hell of a life..here is what I feel
extreme fatigue all the time
anxiety…I fear to walk or travel alone..
panic attacks…feeling of passing out
stomach cramps..I feel like small bubbles of acids are exploding inside my tummy..and anyone can hear it who is near me..
nausea and instant urge for pooping..
my vision is blurry and my breath smells bad when condition is worse..
note: blood tests ct scans came fine..
so what do you think? are these symtoms of intolerance? I dont knw if my food is causing it.. I already gave up coffee tea coldrinks eggs alcohol as they were ruining my condition..im not sure about dairy wheat or gluten..pls suggest me..
Dee, I am sorry to hear of your extreme conditions. I do hope you are able to find a specialist that can shed some light on your situation and how to improve your quality of life. Hang in there : )
Hi dee hope u r better sonce ur post. If not well then cut out dairy and gluten for a couple weeks. If ur symptoms subside well then ur most likely sensitive to both. Eat something like pasta and bread after the 2 weeks and see if any of the symptoms come back. U do sound gluten intolerant tho and ur gut is damaged by it. Just try cutting out dairy and gluten and see how u go. Oh and drink bone broths. Google beef and chicken broth. Go to ur local health food store and ask someone if they have any. It is highly healing for your gut but u have to drink consistently. Look up gaps foods. They are generally safe for ur gut unless u r intolerant to a certain fruit or vege. Good luck
I wouldn’t mind some thoughts on my situation and whether gluten free is the way to go for me, and even my children. I will try to be brief and sum up in chronological order.
* In 2012, a blood test (following a rejection from blood donation centre that my iron levels were too low) indicated I had low iron. Took liquid iron supplement (Ferro-liquid) to get it back up.
* Mid 2016, attempted to donate blood again and discovered my iron levels were lower than previous test. Pathology blood test indicated severe iron-deficiency anaemia. Had 2 iron infusions within 2 weeks to bring up levels to normal.
* To determine/treat cause, GP recommended Mirena IUD due to my menorrhagia (heavy/prolonged periods), a contraception which can be helpful to reduce blood flow. Had this procedure in November 2016.
* Blood test end of November indicated positive gliadin, strongly suggesting presence of coeliac disease. However, endoscopy procedures (top/bottom) in December indicated that no features of coeliac disease was present (and I could also rule out bowel cancer as cause of blood loss). GP concluded I could have a gluten sensitivity but I was not suggested to, nor persuaded from, trying a gluten free diet perhaps since I didn’t show adverse or obvious symptoms.
* In recent times, I feel I have had symptoms of brain fog – poor memory, lack of mental clarity and alertness.
* I generally don’t sleep well and feel fatigued during the day. Whether I sleep early or not, I often wake up during the night and have restless sleep.
* Previous blood tests indicated I had a Vitamin D deficiency. Taking supplements atm for this. I have read this can cause brain fog? And improving their VitD levels alone helped someone recover from their brain fog.
* I have very slow to non-healing wounds (bruises, scratches, facial blemishes). Possibly due to my previous low-iron?
So, I am basically confused if these symptoms are related or not, if going gluten-free would help, and where I should go from here.
In regards to my 2 younger children, they seem to exhibit hyperactivity and lack of focus issues. My second daughter complains of stomach upsets but I am not sure if this is a gluten or dairy intolerance as she often has cereal with milk in the morning. Sugars does also seems to have am impact on their hyper-activeness/behaviourial difficulties. My eldest daughter does not have the same kind of issues.
Thanks for your thoughts : ) Jou
Jou, it definitely sounds like going gluten-free would be of help to you. A lot of your symptoms do sound connected. I’m not sure what sort of proof you’re looking for, but if you’ve already ruled out celiac, why not give a gluten-free diet a serious go even for 30 days and see if you notice an improvement with your symptoms.
Thank you for your reply, Jennifer. I think I will give your suggestion of trying the GF diet a go, at least for 30 days. While I do eat quite healthy, I love my desserts and being able to readily enjoy all types of foods so am probably looking for any excuse that I don’t need to go GF. It’ll be a struggle to stay on board since we often eat with family and friends but who am I to complain when this is just a matter of will and so many are struggling with more serious issues, such as “dee” above (Feb 20, 2017). Anyway, thanks again & for a fantastic, resourceful site!
Hi, My daughter has had sever fatigue for past 12 months, has a bloated stomach, her teeth are loose and sleeps about 12-13hrs a day and still is tired, lots of blood tests and ct scan, it came back she was very very low on iron, given blood transfusion, more blood tests followed still low iron even after taking iron tablets for a year, recent bloods show low levels of Vit K, C, D, Iron and B12 and something not right with liver enzymes, awaiting MRI scan, doctor has said in 1 of blood tests early on she had HepA (they don’t know where that came from), apparently this has now gone, but doctor says presence of PSA, I’m crossing fingers now they are wrong about PSA. As a child she had milk tolerance, she dosn’t drink or eat dairy products since very small as it made her vomit and diarrhoea. She’s now 33 has never smoked and only goes out occassionally and drinks little alchol. I’m at my wits end, Im now wondering if she has gluten intolerance? lactose intolerance?
I am 46 years old 5ft1in and am normally 115lbs.Have been experiencing severe lower back pain for over 2 years and my weight has gone up to 130lbs, I look like I am 6 months pregnant. I had a pocket of fluid in my uterus that was apparently causing the weight gain and pain. I had a hysterectomy 1 1/2 yrs ago to solve the problem. Needless to say, it didn’t work. I have had blood work, xrays, more blood work,a CAT scan, more blood work… and am now waiting 2 months for a colonoscopy and 5 months for an MRI. Bread and beer are 2 of my most favorite things in the world and now the dr says I ‘might’ have a problem with gluten. BUT…I am fortunate because I have a 32yr old nephew that was diagnosed with celiacs at the age of 2. He can walk me through the dietary issues and help me along the way to being healthy again.
I haven’t been diagnosed with a gluten issue and I’m not sure if it’s a gall bladder issue or gluten. When I eat breads or certain things my belly hurts like 30 mins after under my breast bone and above belly button almost to point I’m gna puke or pass out. Then for a day or 2 belly is tender. I feel bloated and nauseaed
Running to the doctors office even to the er from time to time had me in tears. I would get pain in my stomach so bad that the doctors a few times thought it was gallbladder issuses… Running test that always came back negative but yet I was still in so much pain. One doctor said it was stomach ulcers and gave me meds for that but yet the pain wouldnt go away. One doctor tested me for everything he could think of and NOTHING everything came back normal but yet I was still in pain.. It was as if someone took a knife and was stabbing me right in between my ribs in the stomach area right after I would eat ANYTHING!! I would get cramps not long after with trouble having a BM… I told this to the doctor and he said it was IBS and nothing could be done I would have to learn how to live with it. As well, sometimes it felt like my heart would stop for a second, again more test and that came back normal…
I took things into my own hands as every doctor didnt seem to know how to help me. After finding out about gluten intolerance I went on a gluten free diet… I have never felt so much better since, its like someone turned on a magical switch, its amazing how much I feel better. No more pain after I eat, my skin is looking better (as I was also fighting acne and couldnt understand why I was still having trouble in my 30s..). I have lost weight and that is so nice as well because i couldnt lose it no matter how much walking or going to the gym i did, my weight would not drop… Now it is!!
I was sick for 2 years before I realized I had developed a gluten intolerance. Much like the author, I saw many doctors who all had their own “explanation” for my illness. I was throwing up multiple times a week, and my stomach hurt so much when I ate. I had endless migraines. I was getting canker sores (although I never reported them to the doctors, because I thought it was stress related). All I wanted to do was sleep, but I’d wake up and feel just as exhausted, if not more exhausted than when I went to bed. I napped whenever possible – weekends, the bus to and from work. And the brain fog – it’s so real. I couldn’t concentrate. I couldn’t even come up with the words I was looking for half the time. It was kind of scary. One doctor said it was sinus related and put me on Prednisone. My body hated that, and the treatment lasted 3 days. One doctor told me it was stress, and I should learn how to deal with stress better. (Really?!?!?) One doctor told me I wasn’t getting enough fiber and basically had me start overdosing on it. The next doctor told me I was getting too much fiber and had me remove ALL fiber from my diet for a month, which left me with bread…you can guess how great that month was. Finally, I had a doctor who asked me my family history. (Crazy right?) My dad has Celiac Disease. My cousin’s daughter has Celiac Disease. Since many of my symptoms were not stomach-related, I never even thought that gluten could be the problem. I removed gluten from my diet and a few weeks later, voila! No more headaches, no brain fog, no more canker sores, no more throwing up, no more stomach pain, and I had energy again. I did have to go back on gluten for a month so that I could get blood work done for Celiac. (I was told it would have to build up in my system in order to have an accurate test. That month was awful.) Thankfully, I tested negative for Celiac, but knowing how I feel on and off gluten, I would never go back.
Headaches in my temples and my vision grows gray on spells and everything is white washed out like there’s 1,000,000 W spotlight on it. Severe muscle pain with no strength.
Dizzy, closed esophagus
I was born with hypothyroidism, was born 3 weeks late in 1940. Luckily parents had very sharp pediatrician who figured it out after 6 weeks what in heck was wrong with me. I slept all the time, took hours to get little amount of milk down me. No wonder my Mother hated me. So much of what this article described sounded like my health for most of my life. Not fun and people think you’re just wanting attention and doctors ignored me. I became more aware of this situation from a blogger talking about her health problems.
I was aware of gluten sensitivity due to few people in past talking about it and what it can do yet didn’t think it applied to my situation. Am really starting to wonder.
Hi, I thought maybe you could give me some insight as to why I feel the way I do. My symptoms are, constant nausea but don’t feel like I have to vomit, low back aches, bad breath, phlegm, muscle aches in my legs, feeling sluggish, knee joint pain, and slight pain in the very top finger joints, worry alot, sleeping fairly well except when I wake up with nausea then it’s hard to go back to sleep, brain fog, poor memory.
I have bumps all over my body due to my allergy. They don’t hurt or itch but they are red and tend to peal small pieces of my skin off
I am 62 and about 10 yrs post menopause. Have been disabled for 21 yrs with mainly fibromyalgia and 2 types arthritis. I am currently on a lot of meds that I need to take. Lately I have gained a LOT of weight for no reason. Sounds like a lie but it’s true! I am even on a self started weight reduction diet n do very well with not eating things that I shouldn’t ( my hubby can tell u)! But I am consistently gaining 2-3 lbs / month n m now the same weight as my husband(. I weigh #183 n m 5’3″”tall. This t
Reflects a gain of 35 lbs in the last 14 mos. I have been thin all my life! I hate this n know there is something wrong. Am I on the right or wrong track here?
Hi J.E.,
Sounds like something is headed in the wrong direction. I think you can sense that by the comment you’ve written. I can’t say exactly what’s wrong since I don’t know enough about your case and what needs to happen moving forward. If you’d like to discuss it, we can set up time to review the finer details and talk about your options as to immediate changes and longer-term plans to help you feel better. You can set up this time here: https://www.jenniferfugo.com/strategy-session/
This article summarized my life over the course of the last 5 years. One misdiagnosis after another, one new medication after another, and more specialists than I can count. While I was crying in doctors’ offices, demanding answers, scared to see results, anxious to learn something new and try anything, my health continued to deteriorate and plague doctors. Their solution– let’s try another medication, a higher dose, or a new diagnosis.
Thank goodness research and publications are readily available to us via the internet. I would be gaining weight at record speeds, adding to my medical issues, and still be without answers living in a pharmaceutical world of various medications for symptoms rather than true issues.
I’ve felt bloated for as long as I can remember and I’m only 20! It looks like I’m pregnant kind of bloat. All the time. My mom suggested I get my thyroid tested since she has a thyroid problem and I could have inherited it, but my appointment to see the endocrinologist isn’t until January 2018 so in the mean time i’m trying a 100% gluten free diet and see if that doesn’t help.
I’m soooo tired of the constant bloating. I also always always always have breakouts on my forehead (which I’ve read an be due to digestion problems). I feel tired/exhausted often, have the little white bumps on my arms, have a terrible memory, hands swell up sometimes and are also cold a lot, my periods are so irregular- twice a month sometimes, sometimes I miss months and are sooo heavy! I also feel very anxious a lot, but have never been diagnosed with anxiety- but my dad has.
The only thing that bothers me the most is the constant bloat! Could this be a thyroid problem, or gluten? Or both??
I was not even aware that I had a wheat intolerance until I started eating only natural foods. I’ve been suffering with digestive problems for the last 7 years. Constant diarrhea, bloating, cramps. At first I thought it was artificial sweeteners so gave them up. Symptoms improved slightly. Then I began getting a regular urgency to go even when I didn’t need to. A friend suggested lactose intolerance so I gave up milk and yogurt. Symptoms were greatly reduced but not cleared completely. Two weeks ago I cut bread and flour products from my diet and hey presto! No more Diarrhea, no more urgency, I only have 1 or 2 bowel movements a day instead of 6 or 7. No more bloating, no more cramps. I feel like a new man after 7 years of suffering. I didn’t even connect the other problems until I just read your post. Unable to concentrate for any length of time, muscle spasms and twitching, ulcers on my tongue, eczema, wheezing when I breathe, knee pain. It’s all cleared up like magic. All I did was unwittingly give up bread and flour. I know it won’t work for everybody but it has done wonders for me. Thanks for a great, informative post.
Does anyone have a strong smell of ammonia coming from their feet? Mine smell very strong of it, especially when I have had a gluten episode. I also have throbbing pains in my lymph nodes under the arms and sometimes in the neck area. But its not from infection. Its there all the time. I wonder is it the food particles in my bloodstream released from a leaky gut or something?
Would love for you to do another webinar! Just found this article!
Hi everyone, here’s my experience,
1) Dry sinuses, get worse after food.
2) Depression and anxiety-everything i’d usually take in my stride is now a problem.
3) Brain fog-I park the car up to go to the gym-I get 2 hours free parking and I can’t remember what time I parked it up.
4) Chest tightness and asthma like symptoms sometimes.
5) Difficulty falling asleep.
6) Diarrhoea-ongoing.
7) Left ear ringing/blocked all the time- about 10 weeks now-All the GP says is put some olive oil in the ear.
8) Weak wrists- carpal tunnel syndrome like.
9) Shoulder pain when reaching upwards.
10) Gurgling tummy.
11) And a strange discomfort on the back of my calf. There’s usually no feeling but when I wipe the calf with a towel It gets slightly painful.
12) I think i’ve cracked a tooth or two.
This all started off or became noticeable when I was in Bangkok in February this year. I started to get a bronchial feeling or a phlegm on the chest type feeling. I also just couldn’t get enough sleep, I must have been sleeping for 16 hours a day. My ankles swelled up like a balloon. I went to the hospital and they gave me all sorts of tests and found nothing, or should I say a bit of bronchitis.
I came home from Thailand and then got a strange rash on the back of my hand which eventually subsided and went away.
I was taking 30mg Lanzaprazole at the time for GERD. Went to see the GP when I got home, he changed me onto 2 X 20mg Omeprazole. I’ve since stopped taking the PPI’s as I think they got that wrong.
Doctor took some blood tests in July-nothing came back-all OK.
I do get a perianal abscess every now and again but they aren’t as regular as previously
So I keep going round the Doctors and badgering them.
So went last Tuesday and she gave me a good examination and told me to get some blood tests and a stool sample done. Got the blood test done right away, nurse had a slack day and I went home and did the stool sample-hahaha- unfortunately I may have pee-ed into the diarrhoea-LOL- Put that down to the brain fog.I caught the stools in an old ice cream carton and had an accident with the pee.
I had stopped eating gluten on the Friday before my Tuesday appointment so I’m not sure how this will affect the tests.
The Doctor is aware of this. So now i’m just waiting the results.
I do feel as though i’ve improved a little since coming off the gluten. Some symptoms are still there but the tummy gurgling has reduced without a doubt. I have read up on the gluten withdrawal symptoms so I’m going to give this a good run before I give up all hope.
I have been ill since January of 2016. Started seeing specialists that spring. Was misdiagnosed with psoriasis when in fact I have eczema, had an ulcer in my stomach, became highly anemic (12 weeks of iron transfusions), the skin on my hands and feet would break out so bad that the skin would fall off and my hands looked burnt. I have 11 of the 12 symptoms listed above. My allergist had suggested the summer of 2016 to go gluten free. I love beer so I didn’t. I am on a lot of medication. The brain fog and headaches have been terrible as all the other symptoms listed above too. I decided to go gluten free. In 24 hours this has happen: Amazing!
• I feel great and in a great mood
• No constant headache
• No brain fog
• Did not get up in the night to eat
• The joint in my index finger on my left hand will bend now and is not as tender
• The pain in my chest between my breast is entirely gone
• Have not had to clear my throat as much today
• I have not had to blow my nose as much today
• No blurry eyesight
• Gurley stomach has been minimal
• My teeth do not feel as jagged
• My feet have not had the burning sensation as bad
• I did not feel exhausted when I woke up
• No bloating today
• Itching is minimal today
• Wheezing is reduced
• Not coughing up as much phlegm in my chest
• Not clenching my jaw
Tina, did you see my most recent article on Eczema? I think you’d really find it interesting –> https://www.jenniferfugo.com/2018/01/16/eczema-treatment/.
That’s amazing that you’ve been feeling better so quickly! I’m glad to hear that. Keep me posted on your progress 🙂
Thank you for your page it has help me so much, I am either gluten intolerant or allergic , either way I have been sick for a long time and on my own found that the culprit is wheat …
I have been through this with doctors not taking me seriously after 10 years of going in for chronic joint pain and muscle spasms, edema in my arms and feet, constant brain fog and not being able to focus, constant headaches, terrible stomach issues with bloating, gas, and diarrhea, and fatigue – so so so much fatigue! The final straw was that my bathroom issues got so bad that I had to be near a bathroom at all times, it caused me so much anxiety and was ruining my life, especially when travelling for work or with family. I had no clue about a gluten allergy until my coworker brought it up, so I talked to my doctor and he recommended I try an elimination diet. I was able to determine wheat gluten as the source of my stomach problems, and about a month after being fully off of wheat gluten, my other issues began to dissipate. That was 4 years ago and I honestly have never felt better – I have more energy than I’ve ever had, I don’t get joint aches, muscle spasms, I am clear headed and my anxiety has VASTLY improved, and my stomach issues are gone (unless I get “glutened”, but key is just cooking everything at home and not going out, so that’s a money saver anyways!). The most irritating thing is people who criticize me or don’t believe me and treat me as if I’m part of the “gluten fad”, but that’s easy enough to brush off because at least I have my health and it’s all my business anyways.
I share because I hope that other people experiencing these similar issues will not feel alone or ashamed because lack of care provided the healthcare community regarding this serious issue. Take care of yourself, listen to your body, and push for your health!
I’d like to ask if the gluten elimination diet (like the one in your e-mail letter) will still work if you have already been *mostly* gluten-free for 1,5 years? “Mostly” meaning a basically gluten-free diet but not a strict one, for example sometimes I’ve got a small dose of gluten in a ready-made product, etc. (And beer is something I just cannot give up, though I’ve mostly chosen gluten free ones!) I have experienced e.g. lessening of migraines, and after being exposed to wheat I’ve usually got a flu soon after (yes, truly), so those would seem to point to gluten-free being good for me, but I’d like to be absolutely sure, also because gluten-free is so often dismissed as a silly fad nowadays… So I’d assume I’d need to re-introduce gluten (for 7 days at least?) and then eliminate it for at least 7 days?
Hi Melina, yes. You’ll likely have the same effect assuming that you’re actually sensitive and there’s not something else going on. It’s worth a try!
I have been researching for MONTHS! My son, 27 has had, for about a year, some odd symptoms; going through periods of not being able to walk due to extreme weakness in the legs, muscle spasms off an on, these last for a few weeks and then he gets mostly better, but then they return, extreme dandruff, noises bother him and cause him to spasm, he gets sick eating, almost like he can’t swallow, if he gets anxious or excited he sounds like he is struggling to talk.
With that said, many doctors, some say conversion, he has a GREAT job he LOVES and makes good money, but now he is about to loose EVERYthing, so that doesn’t make a lot of sense, plus this was gradual, not overnight and it comes and goes. Now a specialist has seen him…finally…and thinks it is more auto immune. Has anyone had anything like this. I am reading about the gluten allergy and I am beginning to wonder.